-
1 blind (National Association of the Blind
(NAB))
-
1 deaf and his sign language interpreter (National
Association of Deaf/Hard of Hearing (NADH))
-
1 mentally retarded
(Down’s syndrome) and his interpreter/helper and sister (Parents
Association of the Mentally Retarded Children),
-
1 mobile impaired
(Nepal Disabled Women Association) and
-
2 non disabled actors and
some students from Aarohan Theatre Group.
The following stories have been prepared by
Mary
Aage,
DW, DEO, Dadeldhura (Far West) on the basis of interviews with
some of the disabled and non-disabled participants/actors of the
theatre.
Kaeshwor Shrestha, 19, suffering from Down's syndrome
He is from the
handicap NGO: Parents Association of the Mentally Retarded
Children. He is handsome, open, obliging, often smiling.
Talking to Kaeshwor for 10 minutes is enough to realize that he is
one of the few lucky mentally retarded persons in Nepal, who is
brought up in a family who loved him, taught him good manners and
sent him to school.
Though his ability to learn at the same speed as children of the
same age is retarded, his dreams and feelings are not.
Nirmala (Didi), Kaeshwor's sister
A very affectionate and committed woman and
sister (she is not married). Though she might have sacrificed
herself to take care of her brother Kaeshwor, she does not radiate
to feel sorry for herself. She seems to be an intelligent,
self-confident woman with real interest and understanding of the
situation of the disabled.
There are many disabled in her area and many families are hiding
the disabled away from the community
Nirmala: When he was a small boy, he gave the family many
problems. He got lost and was very irritating for the
family-especially when we had guests. He destroyed cameras, our
TV. Others often teased him in the area. Nirmala felt very hurt,
when it happened. People are not teasing him so much any more
because of the increased information/awareness through TV, radio.
Kaeshwor did not speak until he was 5 years old. They tried
everything to make him speak. They thought if they could make him
happy he might start to speak. They showed him Swayambhunath and
other nice places-then he started to speak. In the beginning he
imitated the singing of the birds. It was when he started in class
one, they discovered that he was mentally retarded.
Then he was admitted to a school for mentally retarded children,
Nirmal Bal Bikash. Nirmala tried to teach him the alphabets. She
trained him the whole night; they did not sleep at all. Now he can
read and write a little.
Kaeshwor went to the same school for 12 years. Now he is working
there-producing envelopes, candles, etc. He does not get any
salary for his work. Nirmala thinks the school should provide him
a small amount or the government should give some fixed allowance
for his work. The family has never received any kind of support
for Kaeshwor
What are your dreams for the future?
Kaeshwor:
I want to become a doctor and have a car. (The sister explains
that his sisters son also wants to become a doctor) I don’t want
to marry.
What did you learn from participating in this theatre program
of MS Nepal? How was it to work together with people with
different kinds of disabilities and different kinds of languages?
Nirmala: Even though I already have experiences with disabled I
learned a lot more from this theatre. Especially my interest in
Sign Language has increased. I want to learn more.
The theatre tool is very powerful. Most participants in this
theatre program are educated people but this tool is even much
useful in the villages.
What did your brother learn?
Nirmala:
He was very happy to participate-he tried to act and he got new
friends. He was very proud that MS gave him daily allowances for
his participation. When he saw me giving DA to our mother, he got
very angry and asked: Why do you give my money away?
How did he spend the money?
Nirmala:
He invited our aunt for dinner. He told her he had earned a lot of
money and he would buy a chicken for the money and make a party.
Ramesh Subedi, 22, blind from birth
Ramesh is from
Nepal Association of the Blind (NAB).
Ramesh is a handsome, kind and educated person. He is very clear
about the situation of himself and his blind friends. He is also
very clear about his ideas.
He can express his feelings about being disabled and how he is
perceived by the society freely. Being together with him I got a
strong sense that he was listening more intensely than people, who
can see.
Ramesh is p.t. studying Bachelor B.F.A. –the first year. His major
subject is music. He is singing and playing classical music.
Instruments are among others: guitar, drum, harmonium and congo.
From class 1-8 he went to a school only for blind: Purvanchal Gyan
Chakshu Vidyalaya, in Dharan. Class 8-10, he went to a common
school where integrated blind students also studied.
I am blind from birth. When I was 7-8 years old my parents took me
to a doctor but he could not make me see. My eyes are missing some
kind of fluid. My family environment is very good. They always
support me. They also don’t accept caste discrimination. We are
brahmins but also dalits may come into our home.
My parents also ask for my advise in some matters.
What are your dreams for the future?
Ramesh:
I want to open a music institute and give teaching in music in
mornings and evenings. In the daytime I want to do social work in
my organisation.
What did you learn from this theatre program?
Ramesh:
I learned so much because MS mixed people with different
disabilities-not only blind. I learned the problems/needs of
people with different disabilities than my own.
I have learned how useful the theatre tool is in order to do
awareness campaign/information about disabled and it could also be
used to sensitise the politicians as a tool for lobby work.
Before this theatre program I thought playing music and singing
was the only usable tool to rise awareness. Now I have discovered
how useful theatre is. We are planning to use it in my NGO in
Lalitpur for the future.
Loonibha Tuladhar, 19, student of Aarohan Theatre School
A tall, plump good-looking woman, relaxed dressed in jeans and T-shirt
Loonibha was a non-disabled actress in the theatre. Very open-a type, who seems to be able to
communicate with anybody, without prejudices. She radiates energy.
Loonibha:
I have studied theatre only for one month. This was one of my
first experiences-and that was great!
The most important thing I learned from Ramesh (the blind actor)
is that he can dream- it means that he can see some kind of
pictures in his dreams even though he is born blind. He dreams in
black and white-no colours.
From the deaf actor I learned: I would not be shy/embarrassed to
be his daughter (in the play), because he is smart, has ideas and
humour and he taught me sign language.
What do you think about theatre as a tool to inform/arise
awareness about disability?
Loonibha:
This is one of the most effective tools because when you only
speak people are not convinced, but when you see it, people can
understand. Through theatre you can express feelings and people
can see that disabled are persons with the same feelings as you
and I.